Care journeys

Redesigning care journeys

Anyone who has been a patient or service user, or supported a family member through an episode of illness, will know that we do not have a perfectly designed health and care system. At times it feels like it is for patients, service users and families themselves to ‘join the dots’ and make connections between agencies, rather than being supported to do so by the system. This is a reflection of the fact that the system has typically not been ‘designed’ at all. It has evolved over time in various ways, dependent on local history and circumstance. This also puts considerable stress and burden on members of staff, who need to make sense of ill-defined, fragile and often chaotic systems while managing the workload associated with them.

Ideally, in every care journey there would be a chain of interconnected processes, which have been deliberately designed and managed to meet the needs of patients and service users and to maximise flow and reduce waste, delays and duplication. It should be clear who has responsibility – both for managing the overall process and for the clinical management of each patient or service user. This would help ensure an appropriate and effective flow of information and resources.

In their book Lean solutions, Jones and Womack argue that many of the same disciplines and methods that have yielded improved quality and productivity in manufacturing can also transform the outcomes and experience of consumers in complex service environments such as health care. They set out the following principles of ‘lean consumption’ from the customer’s viewpoint:

  • Solve my problem completely.
  • Don’t waste my time.
  • Provide exactly what I want.
  • Deliver value where I want it.
  • Supply value when I want it.
  • Reduce the number of decisions I must make to solve my problems.

In the health and social care context, we should also add ‘engage me as a full partner in my own care’, with a view to ensuring that efforts to improve the quality of care are co-identified, co-designed and co-produced by those providing and using services.

In recent years, the level of time and resources given to capturing the opinions and experiences of patients and service users about their care has grown appreciably: surveys, online feedback and focus groups are now commonplace in health and social care. The use of patient shadowing techniques and observation of patient and professional engagement is also on the rise. But it is still unusual to find examples of service redesign projects that have been shaped and driven from the start by patients or service users, operating as active and equal participants in the change process., Given that all services, unlike goods, demand some form of interaction between those providing them and those using them, and as such are ‘co-produced’, there is a pressing need to address this deficit.

The Health Foundation’s Flow Cost Quality programme was a concerted attempt in the NHS to address the challenges identified by Jones and Womack. The programme set out to improve patient flow along the urgent and emergency pathway in two NHS foundation trusts in England (see Case study 1). Much of the learning from the programme is highly relevant for communities wishing to tackle the topic of improving flow on a genuinely whole system basis. It demonstrates that a combination of lean approaches, strong system leadership and broad stakeholder engagement can be employed to reshape health and social care services and deliver sustained productivity gains and improved patient outcomes and experiences.

However, there are additional challenges that need to be addressed when attempting large scale change across multiple settings and stakeholders in local health and social care economies. These are discussed in Section 3.2.

Using a structured approach to improve flow

As described in Case study 1, the A3 problem-solving process was one of the key methods used by Sheffield and South Warwickshire to help them analyse their systems and develop tests of change as part of the Flow Cost Quality programme. As well as helping the teams to understand the root cause of problems and test solutions, it proved to be a powerful method for changing the beliefs and behaviours of those involved. It can be adapted for use on a whole system basis by addressing five key areas of work:

  • Creating space for the system to come together
  • Understanding the ‘current state’
  • Collecting and analysing data
  • Developing a ‘future state’ plan
  • Implementation, evaluation and learning.

Key area 1: Creating space for the system to come together

The system described in Figure 1 gives an example of the various stakeholders in England that could be involved in providing diagnosis, treatment, care and ongoing support. A wide range of professionals employed by a multitude of agencies need to work together effectively in patients and service users’ own homes, in other community settings, and in a range of institutions including care homes, hospitals and inpatient mental health units. Some service providers will have daily contact with a few other agencies, but none are likely to see the totality of the system and how its different elements interconnect.

Making the system visible to itself is no easy task. Box 1 explores some of the methods that have been used to understand flows across organisations. Box 4 overleaf describes the process that has been set up in Wigan with a view, among other things, to giving system leaders the time and space to focus on care integration.

Box 4: Wigan Integrated Care Partnership Board

Wigan Borough established an Integrated Care Partnership (ICP) Board in 2016. This draws together key statutory partners including Wigan Council, Bridgewater Community Healthcare NHS Foundation Trust (the community services provider), 5 Boroughs Partnership NHS Foundation Trust (the mental health provider), Wrightington, Wigan and Leigh NHS Foundation Trust (the local acute hospital), Wigan Clinical Commissioning Group (CCG) and GP representatives from five geographically based primary care clusters that cover the whole community. These partners are committed to working together to provide more joined-up services for the local population.

There has been early recognition by the ICP Board that they need to engage with a much wider range of partners. Consequently, a stakeholder forum is being established to encompass education, housing, the criminal justice system, the ambulance service, and voluntary and community organisations, as well as other primary care providers such as dentists, pharmacists and opticians. The council already has a number of well-developed mechanisms for engaging citizens in its work, both individually and collectively, and these are to be used as the partnership seeks a new deal with local people, through which the council, businesses and residents work together to improve the borough. A key element of this work is an increased focus on wellness and prevention, as described in Case study 3.

Many communities have similar arrangements to Wigan for drawing together partner organisations. However, there is a risk that they fail to reconcile the competing perspectives, values and assumptions of the partners, and are unable to develop a shared view of the problem to be addressed. The use of a structured method such as the A3 can help guard against this by creating a common vision, goals and approach to improvement. In this way the system not only becomes ‘visible to itself’ but is aligned towards a shared purpose.

The value of these methods hinges, as we have stated, on the time, resource and commitment that participating members are prepared to invest in them. Building trust between people working in different organisations and professions takes considerable time and effort. Each participant needs to approach the exercise with a degree of humility – they must recognise that no single organisation has the capacity, insight or authority to solve a system-wide challenge on its own. This is particularly important in the health and social care world, where historic resource, power and prestige imbalances between organisations and professions can make it difficult to ensure that each participant enters the collaborative process on an equal footing. Highlighting the unique expertise and knowledge that each participant brings to the process, and the particular challenges they face in their part of the system, can help in this respect. It gives each organisation the opportunity to demonstrate that many of the challenges they face are more entrenched and multi-faceted than their partners may have realised, and that they cannot be solved simply with more resources or by a technical fix.

Ensuring that participants have the necessary skills to maximise the impact of any collaboration is also crucial. These skills include the ability to make connections between your own work programmes and strategic priorities, and those of others; a willingness to operate in networks that do not have clear rules; and a capacity to identify and strengthen shared values. However, these attributes have not always been given the priority they deserve in the training and recruitment practices of health and social care organisations. Yet, in an increasingly interconnected and interdependent world, they are essential skills for the health and social care workforce – a necessity, not a luxury.

Key area 2: Understanding the ‘current state’

A key step in moving towards improving whole system flow across an entire health and social care economu is to understand what is happening at present. There are a variety of approaches that can be used to achieve this, including process mapping, hand-off charts and collecting data on waits, delays, turnaround times and other process measures.

As well as these ‘technical’ tools, this phase may also include an assessment of the economy’s cultural and infrastructural readiness for change, without which any process of service redesign will have limited impact. This assessment should start with an open and honest conversation among the organisation leaders in each health and social care economy about the financial and workforce pressures they are facing, and any emerging challenges that could end up taking time and resources away from the process of change. Identifying these barriers at an early stage, as well as any major capability gaps within the economy, is an important part of the change journey. But the conversation should not focus purely on the system’s deficits: every organisation, however troubled, will possess assets that can be usefully deployed and shared.

None of this is straightforward. It takes time for individual organisations to map their assets and deficits and even more time for the economy as a whole to take stock of what has been identified and what the implications are. It is important for local leaders to have sufficient time to come together, and to build the trust and understanding necessary to have detailed and frank conversations about the current state of their local health and social care economy.

These issues are explored more fully in Section 5, which looks at the eight key enablers underpinning effective whole system flow. It highlights the fact that the multiple levels of the organising framework set out in Figure 3 impact on each other and need to be addressed simultaneously in a complex real-world context.

Engaging patients and service users and their families and carers directly at this stage can also be very powerful. Womack and Jones suggested a version of process mapping undertaken from the customer’s perspective to create a lean consumption map.84 This shows waste and non-value added time expended by patients and service users and their families and carers, not just by service providers. It can generate important insights into key interactions in their journeys through the system. Addressing these can greatly improve outcomes as well as experience. The lean consumption map is likely to reveal considerable waste and duplication, which is hard to justify to those on the receiving end of service delivery. It creates an agenda for action and builds the will to make change happen.

Key area 3: Collecting and analysing data

Process mapping will identify a range of obstacles and challenges to achieving a smooth flow of patients, service users, staff, information and resources across the system. More in-depth analysis will provide a deeper understanding of the root causes of problems and help identify potential solutions that can then be tested.

Many communities lack the capability needed for this sort of analysis, especially when seeking to link quantitative and qualitative data from a variety of sources, encompassing health and social care. Some providers have invested heavily in expert data analysis units dedicated to supporting teams leading improvement work at the micro and meso system levels. However, they are the exception rather than the rule. In some organisations, a great deal of data are being generated but not translated into actionable knowledge or effective organisational responses. Often analysts’ time within the NHS is taken up with routine data reporting requests from external organisations.

Investment in analytical skills will be a critical enabler in improving whole system flow. Box 1 describes some of the methods that can be used to understand flows across organisations which could be exploited by skilled analysts.

Key area 4: Developing a ‘future state’ plan

As the current state becomes better understood at a sufficiently granular level of detail, partners will build an increasingly strong grounding to work on together to generate ideas for improvement. Often, health care organisations embark on major change programmes through the creation of a comprehensive blueprint that is imposed top-down using a programme management approach. Such a linear approach has significant limitations in the world of partnership working across a complex system.

The work of Paul Plsek and others on complex adaptive systems suggests that a more successful approach may be to generate a high-level vision and to establish a few guiding ‘simple rules’., These rules should be flexible enough to give local change agents the licence to adapt them to fit their own context. Creating a permissive working culture geared towards harnessing the ‘natural creativity’ and ‘skills and capacities of individuals in the system’ is also important. There should also be a focus on developing joint solutions to problems in which all parts of the system have a shared stake and responsibility.,

In relation to flow, some simple rules might include principles such as intervening early to prevent deterioration, ensuring that the right senior decision makers are available on a timely basis, building multidisciplinary and multi-agency teams, and making sure that the right information and resources are always accessible.

Key area 5: Implementation, evaluation and learning

Implementation is never an easy phase in any change programme. This is especially so in a complex multi-agency environment. In many cases, the process will involve a series of ‘bite sized’, microsystem-level improvement projects. Within each of these, an emphasis on collaborative reflection and shared attention to emerging outcomes can indicate what is working well and what is in need of further attention. It is essential that such projects are carefully aligned and coordinated by organisation and system leaders: first, to ensure that key staff and resources, such as improvement coaches and data analysts, are not stretched too thinly at any one time; and second, to ensure that activities are consistent with organisational and economy-wide objectives and that there is sufficient ownership of them at every level. Effective strategic oversight and coordination is also needed to ensure that piecemeal solutions – or worse still confusing or conflicting practices that could undermine system safety – are not implemented and embedded by different teams in different parts of the same economy.

In short, microsystem-level initiatives need to be supported by wider organisational and local health and social care economy changes if they are to be impactful, integrated, safe and sustainable. Again, this emphasises the interdependency between the multiple levels of the model proposed in this report. The need to engage front-line teams while at the same time redesigning care journeys across boundaries and putting in place system-level enablers is what makes establishing whole system flow a ‘wicked problem’.

A wide range of techniques may be adopted to support the implementation phase, including aspects of large-scale change methodology and experience-based design, which facilitates the deep involvement of patients, service users, carers and families. The use of rapid tests of change rather than more traditional programme management helps to focus teams on overcoming obstacles and secures quick wins that build momentum – although compliance with the principles underpinning the PDSA approach varies considerably. To help bring together the work, there is an opportunity to use the Big Room approach to establish a learning culture across the system as a whole.

There are few instances in the UK of this type of whole system redesign. One interesting example comes from the north east of England, which grew out of the work led by the former strategic health authority on a ‘North East Transformation System’ (NETS). Case study 2 shows how partner organisations in Darlington worked together to redesign dementia services to achieve improved flow across boundaries and to tackle serious quality issues.

Case study 2: Darlington Dementia Collaborative

In early 2009, five organisations responsible for providing health and social care services in Darlington agreed to collaborate to deliver large-scale change and to improve the flow of patients and service users across organisational boundaries and improve the care they were able to deliver.

The Darlington Dementia Collaborative, which had support from the start from the chief executives of the five organisations, was underpinned by a commitment to continuous improvement. One of its aims was to determine whether a consistent approach to improvement would work across organisational boundaries. As two of the organisations were already using a method based on the Virginia Mason system (see Box 2), the collaborative agreed to use this method as the basis of a training programme for senior staff across all organisations. The programme included:

  • training and support in the use of lean methodologies, improvement in quality and the elimination of waste for people working on the front line
  • lean methodology awareness training for senior members of staff
  • competency assessment in the application of lean tools and techniques
  • five-day rapid process improvement workshops and process mapping events for ‘point kaizen’ transformation in specific areas/departments/wards.

The Collaborative focused its efforts on the implementation of the then recently published National Dementia Strategy. Over a 12-month period, it reported a range of process improvements, including:

  • a reduced lead time for patients to be seen by liaison psychiatry from 5 days to 1.6 days
  • a reduced length of stay on the elderly medical ward at Darlington Memorial Hospital from 14.3 days to 10.2 days – achieved without an increase in readmission rates
  • a 24% reduction in A&E attendances and a 17% reduction in acute admissions among four care homes involved in a rapid process improvement workshop to pilot a new way of working.

Staff feedback was also positive, reporting that the Collaborative had helped to strengthen relationships, improve communication and reduce silo working between the participating health, social care and care home providers. New ways of working have also emerged as a result of the Collaborative, such as mistake-proofing systems and processes, and staff huddles.

The model used in Darlington has now been applied by other dementia collaboratives in Harrogate, South Tees and North Tees.

Tackling failure demand

When AQuA – an NHS health and care quality improvement organisation – conducted its rapid review into whole system flow (see Appendix 1), many of the stakeholders it consulted emphasised the need to prevent people flowing into the system unnecessarily. Any redesign of care journeys needs to start ‘upstream’ and invest in wellness and prevention to reduce failure demand and help people live healthy lives.

Earlier in this report, we gave John Seddon’s description of the concept of failure demand – the demand that arises from failure to provide a service or to provide it in a timely or effective fashion. Seddon has consulted in a variety of sectors, including the commercial services sector and public sector environments. He suggests that up to 40% of the work of employees in such sectors can be taken up by failure demand. This might involve dealing with queries or complaints as a result of a defective or incomplete response to a customer request. It may also involve the need for more intensive intervention because a service situation deteriorates due to the lack of an early, effective response.

Many policymakers and health and social care managers recognise this as an enormous challenge (see Box 5). For example, many frail older people fail to receive at home the early intervention they need to treat a minor infection or illness, so they deteriorate and need admission to hospital. Once in the hospital environment they can quickly lose their ability to live independently, requiring an extended stay in hospital, and potentially a stay in residential care, which could have been avoided.

Box 5: Tackling failure demand in Scotland

Driven by a desire to design services in Scotland around what matters to people, Healthcare Improvement Scotland is developing a method to detect and understand the ‘source’ of the failure demand often created in health and social care.

This area of focus has emerged from support being provided to one of the new health and social care partnerships within Scotland and through a systems mapping process that took an ‘outside-in’ view of the integration of health and social care systems. This proposed programme of work is in the early design phase and has the following aims:

To help partnerships understand the interconnectedness of their health and social care system, including how actions taken in one part of the system (eg: to save money) can result in unintended consequences in another part (eg: increasing overall costs or adversely affecting outcomes for service users).

To help partnerships get a better understanding of where the failure demand is currently presenting in the system and to use that knowledge to ensure that redesign and/or investment is focused at the source of this failure demand, rather than the part of the system where the failure demand presents.

Case study 3: The ‘Wigan Deal’ for adult social care and wellbeing

Like many local authorities, Wigan Council has faced unprecedented reductions in government funding of its services over the past five years. Between 2011/12 and 2015/16, Wigan Council had to reduce the cost of services by more than £90m. During that period, adult social care and the council’s health functions lost £25m from its budget. In response to this, the council put in place a reform programme targeting delivery of savings at scale while at the same time improving outcomes for service users.

Stuart Cowley, Director of Adult Social Care and Health for Wigan Council, describes the approach as ‘simple but profound’. The underpinning principle is to reduce people’s dependence on traditional health and social care services and to support them to have greater choice and control, as well as increased connections with resources within their local communities.

Council staff have been through an innovative ‘deal’ training programme to help them rethink the way they relate to those who use their services. They are encouraged to hold ‘different conversations’ with residents to better understand individual needs and strengths, gifts and talents, rather than taking a traditional deficit-based approach. The ‘know your community’ strand of work focuses on developing community capacity and connecting people with needs to community-based solutions. Finally, a ‘standard work’ on ‘developing new ways of working’ has given the workforce the permission and support to be innovative and creative in return for a pledge to be positive, accountable, and embrace new ways of working.

The council has identified more than £8m in permanent revenue savings through delivering the Deal for adult social care and wellbeing. Hundreds of new-style care packages have been put in place. Meanwhile, front-line staff have greater knowledge and awareness of community provision, coupled with a willingness to move away from costly and prescriptive traditional services.

Wigan reports that there has been: increased investment in early intervention, reducing the dependence on long-term social care; a redesigned reablement service; and a fundamental review of daycare services, reducing the number of physical daycare centres from 14 to 6 across the borough. The council now has hundreds of case studies of residents whose lives have been changed by the ‘deal’ approach. It has reported that residents are registering higher levels of satisfaction in relation to their experience of council services, while at the same time the cost of many of the care packages has been cut by up to 50%.

The newly established Wigan Integrated Care Partnership Board (see Box 4) will be considering how this innovative approach can be extended to a wider range of health and care services wrapped around GP-led primary care teams. The aim is to stop people flowing into the system unnecessarily by providing more effective support for them to live independently.

Failure demand represents a poor outcome and experience for patients and service users. It also signifies the poor use of the limited resources at society’s disposal. It is important to redesign services so that patients and service users flow more smoothly through the system when an acute intervention is needed, but it is equally important to intervene early to prevent people flowing unnecessarily into the system in the first place.

There have been a number of policy and service responses to this challenge:

  • First, investment in population health measures aimed at wellness and prevention.
  • Second, an emphasis on shared decision making with patients (there is evidence that where clinicians and patients work together to reach an informed view on treatment options, patients will often choose less resource-intensive options than those recommended by professionals).,,
  • Third, the NHS England programme to improve care for patients with long-term conditions aims to reduce failure demand by introducing risk stratification and case finding to target those patients most at risk. It aims to meet their needs through integrated community teams and promoting supported self-management of patients’ conditions.,

In local government and the voluntary, community and social enterprise sector, a similar approach known as asset-based community development has also been used. This involves identifying the resources patients and service users have – both themselves and within their community – that will enable them to live healthy and fulfilled lives and reduce their reliance on support from professionals. Patients and service users and professionals then work together as equals to co-produce services and outcomes.

The borough of Wigan, whose integrated care organisation was described in Box 4, has been working to develop such an approach, with a strong emphasis on wellness and prevention. This has taken the form of a new ‘Deal for adult social care and wellbeing’ (see Case study 3), and is now extending into other areas, including population health and integrated working between health and social care.

None of this is easy to do. As the discussion of the key areas of work shows, there are significant barriers to overcome. Addressing these challenges requires action at the front line as well as at the local health and social care economy and national levels. The following sections describe in more detail the opportunities, actions and enablers at these levels.


¶¶ See glossary for more details of these approaches

*** See glossary for more details about kaizen (continuous improvement).

††† See glossary for details of ‘standard work’.

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