Endnotes

  1. ‘Four years’ work in one’: vaccine researchers are the unassuming heroes of COVID-19. The Guardian; 30 December 2021 (https://www.theguardian.com/lifeandstyle/2020/dec/30/four-years-work-in-one-vaccine-researchers-unassuming-heroes-covid-19).
  2. Who Cooked Adam Smith’s dinner?’ the economist Katrine Marçal asked in her 2012 book of the same title. Adam Smith’s work was dependent on his mother cooking his dinner. As recognised by the vaccine scientists, informal, unpaid, unmeasured care is the foundation of every-day life as well as the academic and scientific discoveries on which we all depend.
  3. Research by the Resolution Foundation has questioned the extent to which women’s jobs suffered. It appears in fact that women continued to shoulder their work hours and longer hours of family care with the result that their mental health ‘significantly worsened’. See: Labour Market Outlook Q2 2021. Resolution Foundation; 2021 (https://www.resolutionfoundation.org/publications/labour-market-outlook-q2-2021/).
  4. Research from the Health Foundation documents both the crisis in care and the inequalities of provision within current frameworks See: Suleman M, Sonthalia S, Webb C, Tinson A, Kane M, Bunbury S, Finch D, Bibby J. Unequal pandemic, fairer recovery. The Health Foundation; 2021 (https://doi.org/10.37829/HF-2021-HL12). See also: Incisive Health and Age UK. Care deserts: the impact of a dysfunctional market in adult social care provision (https://www.ageuk.org.uk/globalassets/age-uk/documents/reports-and-publications/reports-and-briefings/care--support/care-deserts---age-uk -report.pdf).
  5. His Holiness Pope Francis. Why the only future worth building includes everyone. TED; 2017 (https://www.ted.com/talks/his_holiness_pope_francis_why_the_only_future_worth_building_includes_everyone?language=en).
  6. Buber M. I and Thou. Touchstone Books; 1970 [1923].
  7. Aristotle (trans. Sinclair T A). The Politics. Penguin Classics; 1984. As frequently noted, Aristotle did not in fact expect everyone to participate: women and slaves for example were excluded. Modern discussions of eudaimonia rightly assume participation of all members of a society.
  8. Kate Raworth tells the story of rational economic man’s beginnings as a nuanced portrait in the 18th century writings of Adam Smith and his later development into the crude cartoon of the Chicago school’s modelling (1970s), which to this day determines policy and shapes wider thinking and behaviour (Raworth 2017: pp 94–102). Homo economicus has a biological twin, popularised through Richard Dawkins’ ‘selfish gene’ (see Tsing 2015 p 28). While this idea of the selfish human is also now discredited, it has been significant in the design of systems that emphasise the risk of cheating, leading to the investment of up to 80% of welfare budgets on procedures for the policing/punishing of ‘deviants’ and so called ‘free-riders’ (Cottam 2018).
  9. I use the definition of care proposed by Joan Tronto, cited in: Puig M. Matters of care: speculative ethics in more than human worlds. University Of Minnesota Press; 2017.
  10. See for example: Fraser N. Unruly practices: power, discourse and gender in contemporary social theory. University Of Minnesota Press; 1989. Poo A-J. The age of dignity; preparing for the elder boom in a changing America. The New Press; 2015. Segal L. What is to be done about the family? Penguin; 1983. Wingfield A H. Flatlining: Race, work and health care in the new economy. University of California Press; 2019.
  11. In a survey conducted by Sky News only 9% of Britons wanted life to return to ‘normal’ after COVID-19 (April 2020, based on a YouGov poll of 4,343 people who responded that community, access to nature and clean air were priorities). ONS data consistently report that health, relationships and a sense of contentment with work (rather than just having a job), are seen as contributing to life satisfaction (https://www.ons.gov.uk/peoplepopulationandcommunity/wellbeing/articles/personalandeconomicwellbeingintheuk/whatmattersmosttoourlifesatisfaction).
  12. See for example: Prendergrast J. Attachment economics: everyday pioneers for the new economy. Civic Revival (https://www.civic-revival.org.uk/attachment-economics/). Foundational Economy (https://foundationaleconomy.com). Women’s Budget Group. Creating a Caring Economy: A Call to Action; 2020 (https://wbg.org.uk/analysis/creating-a-caring-economy-a-call-to-action-2/). Raworth K. Doughnut economics: seven ways to think like a 21st century economist. Random House Business; 2017.
  13. The work of Carlota Perez has been ground breaking in its analysis of the relationship between technology revolutions and economic change. In the schema developed by Perez we are currently in the fifth technology revolution, which is why I have previously called for a fifth social revolution in which care and revalued care work would be an integral part of a new economy. See for example: Perez C. Technological revolutions and financial capital: the dynamics of bubbles and golden ages. Elgar; 2002.
  14. See: Cottam H. Welfare 5.0: Why we need a social revolution and how to make it happen. UCL Institute for Innovation and Public Purpose, Policy Report (IIPP WP 2020-10); 2020 (https://www.ucl.ac.uk/bartlett/public-purpose/wp2020-10). It is important to note, as I discuss in this paper, that gains are rarely evenly distributed. In the last revolution, gains for workers in the global North have too often been at the expense of exploitation of others in the global South. More recently, we have seen how gains everywhere can be eroded: the ‘gig’ economy has left thousands without stable hours, paid holidays or sick pay while in UK and the US life expectancy is stalling and in some cases reversing. See: Marmot M, et al. Health Equity in England: The Marmot Review 10 Years On. Institute of Health Equity; 2020 (https://www.health.org.uk/publications/reports/the-marmot-review-10-years-on).
  15. Boots was one of the first companies to institutionalise the weekend in 1934 in its Nottingham factory. Originally instituted to cope with a period of over-production, the normalisation of the weekend was a product of the pressure brought from within civil society, organised labour and the recognition of leading industrialists such as John Boot that new forms of capitalism depended on a new deal with the labour force. Such pressures of course were not uniquely British, nor are they necessarily stable with the concept of the weekend under pressure from the gig economy.
  16. Keynes J M. Economic Possibilities for our Grandchildren; 1930.
  17. Hunnicutt B K. Kellogg’s Six Hour Day. Temple University Press; 1996.
  18. TimeWise (https://timewise.co.uk).
  19. Recent scholarship in disciplines from biology to philosophy has emphasised the interconnections and complex support ecologies that underpin all living systems. Donna Haraway for example, drawing on the work of Beth Dempster, has developed the concept of ‘sympoiesis’ to describe the way that systems are collectively produced and evolved by humans, nature and other tissues. See: Haraway, D. Staying with the trouble. Duke University Press Book; 2016. More recently, the physicist Carlo Rovelli has described how quantum theory is leading to new interpretations of the world that see reality as made up of relations as opposed to particles in space (Helgoland 2020).
  20. I have developed the concept of sapiens integra with Anne-Marie Slaughter. For a fuller explanation see: Cottam H. Welfare 5.0: Why we need a social revolution and how to make it happen. UCL Institute for Innovation and Public Purpose, Policy Report (IIPP WP 2020-10); 2020 (https://www.ucl.ac.uk/bartlett/public-purpose/wp2020-10).
  21. COVID-19 exposed the brutal reality of the modern care home. During the first wave of the pandemic, 40% of all UK deaths were among care home residents. See the Health Foundation’s COVID-19 impact inquiry report (ibid.).
  22. For a discussion of the ways in which we infantilise older people, prioritising their safety over their enjoyment, see: Gawande A. Being mortal: Illness, medicine and what matters in the end. Profile Books Ltd; 2014.
  23. Those currently in residential/nursing homes in England number approximately 63,000 younger adults and 393,000 older people. In total 0.7% of the population and 3.1% of the population aged 65 and older. See: Care homes for older people UK market report (31st edition). LaingBuisson; 2021. And: Adult specialist care UK market report (4th edition). LaingBuisson; 2020. Almost 19 million people report having a long-term condition which they expect to affect them for 12 months or more. See: People with long-term health conditions, UK: January to December 2019. ONS; 2020 (https://www.ons.gov.uk/peoplepopulationandcommunity/healthandsocialcare/conditionsanddiseases/adhocs/11478peoplewith longtermhealthconditionsukjanuarytodecember2019).
  24. NHS Digital. Adult Social Care Activity and Finance Report, England – 2019–20 (https://digital.nhs.uk/data-and-information/publications/statistical/adult-social-care-activity-and-finance-report/2019-20/4.-long-term-care) (Figure 14).
  25. In registered early years settings this ratio can be as high as 1 adult to 13 children. See: Department for Education. Statutory framework for the early years foundation stage; 2021 (https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/974907/EYFS_framework_-_March_2021.pdf).
  26. Cottam H. Radical Help: How we can remake the relationships between us and revolutionise the welfare state. Virago; 2018 (p 38).
  27. Anna Severwright, convener at #SocialCareFuture, makes a similar point when she calls for support that is more like an extra pair of hands than the ‘care’ of a parent.
  28. The private sector, who manage 95% of places available within care homes, extracted an estimated £1.5bn profit in 2019. See: Centre for Health and Public Impact. Plugging the leaks in the UK care home industry. CHPI; 2019 (https://chpi.org.uk/papers/reports/plugging-the-leaks-in-the-uk-care-home-industry/). Individuals who own care companies and are domiciled overseas for tax purposes have recycled some of this wealth through philanthropic organisations, claiming they are changing Britain and addressing poverty. It seems astonishing that there has been little public comment on this matter given that the need for such initiatives would be significantly reduced were these same individuals to pay their workers fairly and forego tax avoidance.
  29. Bunting M. Labours of love. Granta; 2020 (pp 202–205).
  30. Radical Help, ibid.
  31. In 2019/20 there were 112,000 vacancies in the formal adult social care workforce, a vacancy rate of 7% in a 1.65 million workforce (https://www.skillsforcare.org.uk/adult-social-care-workforce-data/Workforce-intelligence/publications/national-information/The-state-of-the-adult-social-care-sector-and-workforce-in-England.aspx).
  32. As recounted by Bunting (ibid., p 182).
  33. In addition to his study of the clinic first published in 1963, Foucault made studies of incarceration and madness.
  34. As described in: Foucault M. Discipline and punish: the birth of the prison; 1975.
  35. It has been a decade since the widely admired Dilnot recommendations, and while the recent government announcements are welcome, significant gaps remain. For example, there is no mention of unmet need, the support required for unpaid carers or to address low pay and insecure work in the sector. This would require both fundamental reform to the adult social care system, wider reform to benefits and work, and significant changes in broader society. Discussion of this reform and changes remain largely absent from the mainstream political debate, which is often narrowly focused on older people not having to sell their homes to pay for care.
  36. The research of Brid Featherstone and her colleagues reveals the correlation between child poverty and being taken into care. Children in the most deprived 10% of neighbourhoods in the UK are over 10 times more likely to be in foster or residential care, or on protection plans than children in the least deprived 10% (https://research.hud.ac.uk/media/assets/document/research/cacyfr/CWIP-Executive-Summary-Final-V3.pdf#:~:text=The%20Child%20Welfare%20Inequalities%20Project%20was%20designed%20to,how%20to%20keep%20children%20safe%20and%20strengthen%20families). Featherstone is one of a number of academics who have commented on the way the current enquiry into children’s social care again replicates past models by failing to take the wider context into account (https://www.pfan.uk/evidence_scr/). Also of particular importance is the scholarship of Michael Marmot. In The Health Gap (2015) Marmot dissects the ways in which all aspects of health and care are governed by wider socioeconomic inequalities.
  37. Social Care Future’s collaborative work with movement members and the public uses the term ‘support’ and ‘supporting’ as opposed to ‘care’ in order to emphasise agency and that ‘care’ is not an end in itself. Support is to enable lives well lived. In this paper I have somewhat clumsily used the terms interchangeably, given the invitation to speak to an audience who define themselves as the ‘care sector’. But it is important to note that in the US, those with lived experience are similarly arguing for a change in language to prefigure a change in understanding. As adults in particular, we don’t always want to be ‘cared for’ – rather we need support to live our lives. #socialcarefuture; Changing the story of social care; 2021 (https://socialcarefuture.blog/2021/04/20/by-changing-the-story-of-social-care-we-can-build-public-support-to-transform-it-for-future-generations-heres-how/).
  38. Britain has 5.4 million unpaid carers who are estimated by the National Audit Office to contribute £100bn annually to the national economy (2018). Paid carers include the 1.65 million jobs in adult care.
  39. The idea of barefoot doctors originated in China, see this profile in the Lancet; 2018 (https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(08)61355-0/fulltext). Citizens were provided with basic medical training to support the health system. It is a concept that has been replicated in many developing countries where citizens are supported to contribute to formal health and care systems through various training and income schemes.
  40. The Treasury Green Book has developed a framework for assessing what it terms ‘social value’, but in practice imposing these frameworks onto systems that make decisions based on narrow cost accounting makes little impact – hence the call in this paper for a more fundamental redesign (https://www.gov.uk/government/publications/the-green-book-appraisal-and-evaluation-in-central-governent).
  41. See ‘Experiment 5’ in Radical Help (Cottam ibid.) for a more detailed study of Circle.
  42. Research shows that alongside landscapes of rich experimentation, there are care deserts (https://www.ageuk.org.uk/globalassets/age-uk/documents/reports-and-publications/reports-and-briefings/care--support/care-deserts---age-uk-report.pdf). Understanding the conditions that enable experimentation to flourish and take root, and the types of support and investment required to build the new care infrastructure, will be a critical part of the research programme going forward.
  43. See Care 100 (https://www.care100list.com).
  44. The Health Foundation has been an important advocate for different time horizons in policy and planning. See for example: How can policymakers plan better for the long term?; 2021 (https://www.health.org.uk/publications/long-reads/how-can-policymakers-plan-better-for-the-long-term).
  45. Anne-Marie Slaughter, former Director of Policy Planning at the US State Department, outlines the differences between industrial (chessboard) policymaking and relational (web) policymaking. See: Slaughter A. The Chessboard and The Web. Yale University Press; 2017. It would be valuable to compile a series of robust exemplars following the Harvard Business School case study model that could be used in the training of senior civil servants.
  46. In Radical Help I show how the capability frameworks developed by Amartya Sen and Martha Nussbaum can be adapted to provide very different developmental metrics (Cottam, ibid.).
  47. See (https://www.investin.care). Anne-Marie Slaughter also addresses the principles of a new care economy in her book: Renewal. Princeton University Press; 2021 (pp 126–128).
  48. The Health Foundation has made a powerful argument for investing in social capital, just as we now understand that we must invest in green capital: the two are interconnected. See: The government’s levelling up agenda: An opportunity to improve health in England; 2021 (https://www.health.org.uk/publications/reports/the-governments-levelling-up-agenda) (pp 3–4).
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